Did you know that delirium was a symptom of a urinary tract infection? Neither did I, but it’s something I’m learning to recognize. Apparently, I’m not the only one who has experienced its impact because there was an article on the phenomenon in one of my nursing magazines last month. My husband Lynn’s doctor made the connection for me very recently.
Delirium during a spell of pneumonia
Lynn had delirium for about a month when he had a spell of aspiration pneumonia at one point. I attributed the behaviors he exhibited at that time to pneumonia. I wrote about it related to sundowner’s behaviors.
Continue reading at: https://multiplesclerosis.net/caregiver/delirium-uti-connection/
Since I’ve retired, I’ve found myself on a mission to do something about the plight of caregivers. Why am I so stirred up? It’s because there is a severe lack of training for family caregivers. The lack of training is especially true in rural areas where families are expected to perform medical procedures with little to home health resources.
Challenges of home health care in rural counties
Did you know that in rural America where I live, many counties have no pediatric home health services at all? In some of those rural areas, even adult services are challenging to find. I now have access to adult services, but ten years ago, I did not. Now, the home health nurses that monitor my husband’s care cover five counties and travel over a hundred miles between patients.
Continue reading at https://multiplesclerosis.net/caregiver/training-needed/
Caregiving is a very lonely responsibility. If you have ever been a caregiver, you understand what I mean. All caregivers have probably experienced that feeling of being alone when the smoke clears. The initial burst of enthusiastic help is over. Everyone has returned to their normal lives except you. As the dust settles and the smoke clears to the immediate crisis, you stand alone ready to pick up the pieces of whatever broke this time, keeping up a brave front for all to see.
Continue reading at https://multiplesclerosis.net/caregiver/no-time-isolation/
Throughout Lynn’s journey with MS, we have been fortunate that he has rarely had to deal with any form of mental health impairment. Having primary progressive MS, long ago, he lost his ability to move productively any of his limbs and needs assistance with bowel and bladder functions. However, his mind has always functioned well. He is excellent at Trivial Pursuit games, writes very complex science fiction/fantasy novels for a living, and has more random knowledge about almost any topic related to cooking and building than you could imagine. His MRI shows practically no impact from MS in the memory centers of the brain. All his brain networks are sparking along just great, that is, they were until suddenly in April, they weren’t anymore.
Continue reading at https://multiplesclerosis.net/caregiver/mental-health-caregiving/
This is also being posted on my new website https://sharingwithcaregivers.com
I’m excited to announce that I am merging this website with a new website under construction called “Sharing with Caregivers.” Today I moved all the blogs I have written from this site to the new site in case you are looking for them. The new site’s address is https://sharingwithcaregivers.com
Where this site focuses on multiple sclerosis caregivers, the new site is for all caregivers. I have some information already available for public viewing. Take a look and let me know what you think.
I am concerned that the specialization of medicine is leading to a decrease in the quality of care available rather than an increase. I have seen this more and more over the past several months as my husband has had a series of mystifying medical conditions requiring different “specialties” to determine the underlying cause. These specialties do not always play well together.
Continue reading at https://multiplesclerosis.net/caregiver/specialization-medicine/
My husband, Lynn, began taking Ocrevus, to treat his Primary Progress Multiple Sclerosis (PPMS) in March. As his caregiver, one of my responsibilities is to become familiar with his medications and associated risks. While Ocrevus holds great promise for individuals who have PPMS, the impact of having continuous autoimmunity as a consideration in living his life is significant as well.
Continue reading at https://multiplesclerosis.net/caregiver/immunosuppression-ocrevus/