Triumphs and Disappointments

We are on our last day of vacation and as usual, I think everyone is looking forward to going home–although we have had a great time. There just is no place like home, is there? 

For instance…I helped Lynn take a shower yesterday in a regular shower stall.  I put in the shower chair for him to sit on and then stood outside the shower to bathe him.  Water everywhere, of course!  No room to move him. Had to have his son help me get him out.  Lynn and I were both exhausted but the mission was accomplished.  I am sooo looking forward to our own shower unit that was installed by our church so I could roll him in and out.

Our own bed…that will be nice too.  Appliances that work and the cookware and utensils we need for dinner. Not having to put all the tables on books so Lynn can get his wheelchair under them.  Not having to remove a screen door so he can get onto the deck.

We had a few disappointments.  The biggest one was we tried to take his all terrain wheelchair crabbing one night.  He spent a lot of money to get this special chair so he could surf fish and go on the beach.  Imagine our disappointment when he could not get it to move on sand!  The chair was ordered from South Africa so getting it fixed will be challenging but we have already talked to them and it appears to be a programming issue so there is still hope.  But we will not be on vacation when it gets fixed…disappointing.

Started to go fishing last night.  Got everything ready, headed out the door and it was pouring rain!  We waited a while then decided to get up early this morning to go.  We did, got to the pier around 7 a.m. and fished two hours.  Several bites  but all we caught was seaweed.

Now the triumph!  and this is big. Lynn went swimming in the pool.  The boys sat him on the side of the pool till he got warm, then he went in.  The first day we went into the pool that was only 3 1/2 feet.  It was fun but difficult for him to do anything much.  Yesterday he went into the 5 foot pool and it was awesome.  I was able to help him float around using a float.  He was able to kick his legs.  He was even able to float on his back alone and he’s never been able to do that but the best part…the very best part was ….HE STOOD UP IN THE WATER ALONE!!  Ten times!!  He supported himself with the float.  The boys were on each side to help him get positioned right, then he pushed himself totally upright.  Awesome…. My daughter has the pictures to prove it.

Triumphs and disappointments…. what experience doesn’t have them but all in all, this vacation was awesome and we’re so thankful to have the opportunity to once again vacation together and have a break from all the usual challenges.  I hope you get to have one this year too.

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About mscaregiverdonna

I am a full-time caregiver for my spouse who has Multiple Sclerosis while I try to work full-time, take care of our home, and handle any number of other functions that used to be shared by the two of us. I'm learning that it's amazing what you can do when you have to and when you have God to send you the resources you need to manage moment by moment.
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2 Responses to Triumphs and Disappointments

  1. Many blessings…..thank you so much for sharing all the news….good, better and best!!

  2. Patrick says:

    Sand is an all terrain chair killer no doubt except those balloon tire beach chairs. Though you hit it on the head – it’s about the triumphs! Wishing you all more ahead.

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