Monthly Archives: April 2012

I Don’t Know What I Don’t Know

Do you remember when the person you care for was first diagnosed with MS?  You might not have been around them at the time, but I remember it very well.  Those were very confusing days. I was almost sure Lynn … Continue reading

Posted in Emotional Effects, MS Information | Tagged , , , , , , | 4 Comments

Patient Advocate

Out of the blue today, Lynn asked me to write about advocacy. He said, “please stress to your readers the importance of having an advocate or being one for yourself,” so here goes. When Lynn and I first got married, we … Continue reading

Posted in Ms Journey, Relationships | Tagged , , , , | 1 Comment

Keeping up with the Paper Work

If you are a full-time caregiver, or even part-time but the primary person responsible for someone else’s care, then you know all about paper work.  It’s another one of the unpleasant aspects of caregiving that we have to endure but … Continue reading

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Why is Getting Help so Hard to do?

Ever since Lynn became totally disabled, I’ve had lots of encouragement to get some help.  I know I need help.  My muscles hurt from over use; I get frustrated trying to do everything I need to do; I know that … Continue reading

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Free to a Good Home…with patience

Lynn has started a new MS medication–at least new for him.  It’s Rebif, an interferon beta-1a therapy that is supposed to slow disease progression, reduce development of lesions, and reduce exacerbation occurrences.  Sounds like a good drug but it’s also … Continue reading

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Going to the Movies

I have always enjoyed a good movie. It’s one of the things I miss about not being able to get out and go places now.  However, you don’t have to go out to see a movie any more; you can … Continue reading

Posted in Ms Journey, Relationships | Tagged , , , , , , , | 6 Comments


When I was trying to decide what to write about this week, I was having a hard time coming up with something unique.  I’ve touched on many of the hardships and challenges associated with being a caregiver but as I … Continue reading

Posted in Ms Journey, Physical effects | Tagged , , , , , , | 2 Comments