Sometimes I Feel Like I will Explode

Pressure.   So much pressure.  …but where does it come from?  Me or “them?”

This has been one of those weeks where I have felt I was under extreme pressure all week.  The week started off with me getting up early on Monday for a conference call that wasn’t actually scheduled till Tuesday.  I needed to get up early anyway in order to have the four hours I need to get ready before I go into work for meetings so it was actually somewhat of a relief to have gotten the date wrong but that meant also getting up early the next day…which I did.  “Issues” started flowing in from work Tuesday afternoon and I haven’t had a break since….

My job can be very intensive.  I coordinate investigations, consult on workplace conflicts, and generally give advise on how to address problems.  Often participants are very emotional and the consultations are intense.  I have to be “on my game,” able to listen for variations of the truth, able to see through smoke screens to the facts, able to determine what laws apply and what solutions might work in a situation based on personalities and behaviors that I rely on others to describe.  Therefore, I need to concentrate on what is being said, how it’s being said, and what is not said to make sure I manage a situation effectively.

Now imagine this…I’m on a speaker phone attending a conference call about some highly emotional issue.  I’m multitasking at my desk, looking up information, referencing reports, taking notes, and planning strategies with the people on the line.  Over the baby monitor on my desk, I hear, “Donna I need to be cathed.”  So I take the speaker phone with me, mute the line, glove up and take care of business, never missing a beat.  Then he mouths, “I need nose spray,”  so I apply the spray, then as I put down the spray, “can you make me some tea?” I continue to carry on my conversation and go make the tea. When I deliver it, his foot has come loose from the stirrups in the peddler so I fix that, his socks need to be pulled up and his shin needs scratching.  I finish all this, still on the phone and go back to my desk.  Fifteen minutes later, “Sweetie, can you come here?” and it starts again.

Some days I do okay with this pace; other days I don’t.  When the issues are intense or the stakes are high, I feel intense internal conflict between who gets my attention at that moment. So far, I’ve managed to juggle it all– I can multitask like you wouldn’t believe, but the pressure is getting to me. Several times this week, I’ve just felt like I could not keep going like this.  I would love to quite the dual role.  I would love to go back to work and have someone else be the caregiver for a while but I can’t afford to do that.  The cost would just be too much so I keep going. I admit there are times I almost wish I would get injured or sick so I would have an excuse to stop for a while.  If that would happen, then insurance would pay for a temporary caregiver at least and the decision to stop being a caregiver, even temporarily, wouldn’t be mine to make.

I am very fearful that eventually I won’t be able to keep up the pace.  What will happen then?  We have a little savings but that would not last long if full-time care was needed.  If we lost most of our resources, then we would be eligible for assistance but I don’t want to lose nearly everything so I can get some help.  If I quite my job and worked part-time, we could not pay our bills.  Lynn could go into a care facility but I couldn’t (not that I ever want him to have to do that) but if that happens, what happens to me, the caregiver, who has burned out, lost their income, lost their home, lost their savings? 

I’m getting morbid and over-dramatic but it’s these type of thoughts that cause the pressure.  I don’t want my worst fears to happen. I don’t want to lose our home or to have to put Lynn in a care facility; nor do I want to lose my job (believe it or not, I really like what I do).  So I feel pressured…pressured to do my best at work so I don’t let down my colleagues; pressure to do my best for Lynn because I love him and am committed to him; pressure to try to be a supportive mother and friend; pressure to make it all work.  Where does this pressure come from?  From me. From my own expectations.  From my own demands to do it all perfectly.

So maybe what I need to do is go find a pin…I think its time to create a small leak.  Just a little leak to reduce some of the pressure; not so much as to make me explode or deflate entirely… just enough to stay afloat like a balloon that has lost its elasticity and becomes almost puncture proof.  That’s my goal. To become a low pressure, rubbery balloon. Sounds good doesn’t it? Or better yet, I guess I just need to turn it over to God and let him handle it because it’s just too much for me right now.  So….God, this is Donna.  Here… it’s yours.  Thanks and Amen.

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About mscaregiverdonna

I am a full-time caregiver for my spouse who has Multiple Sclerosis while I try to work full-time, take care of our home, and handle any number of other functions that used to be shared by the two of us. I'm learning that it's amazing what you can do when you have to and when you have God to send you the resources you need to manage moment by moment.
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5 Responses to Sometimes I Feel Like I will Explode

  1. Kathy says:

    Donna
    It sounds like you are getting burned out,and you need to start thinking about yourself,try to find someone that could come in for awhile if even for a couple of hours to give yourself a break maybe a friend or relative if this person was in the service you can get, help tht way and then you get away for a few hours for yourself.

  2. Robbi says:

    Donna
    I have tears rolling down my face, I am you, I hear every word you are saying. I scared myself when I thought maybe I will get sick, please God can I get sick, not real sick just sick for a week, in the hospitol too please so someone will wait on me. Thank god you don’t always get what you pray for. Our family doctor saw the signs though and insisted I get some help, I’ve told this before, we started out 3 days 4 hours a day. Then 4 days 8 hours then 5 days 8 ours now we just hired a full time 6 day and live in, well kind of He goes home often when I don’t think Tom will need to much .We pay him 800 a week I know that is alot but we found places to get it from.It feels good to be more of a wife and less caregiver. The truth of the matter was the MS was killing us both, and me faster then Tom. I love my husband with my whole heart we will be married 39 years this Aug. What good would it do our family and him to have both of us sick. How much does one person have to give up? Our marriage was turning into MS, time to stop and retinki. If I let myself think of the $$ I get very nervous but then I think I know in my heart of hearts I could not keep up this pace, and I did not want our marriage to end on a down note. I want to love my husband and he love me with our whole hearts , no resentment until the day we die. So dear Donna please start talking to caregiver .com, call your church and see if anyone knows anyone that would work for the $$ you can payYou like us, can not go through an agency because in our state by law you need and LPN or RN to cath and for us administer meds.We could not afford that, but we can train a CNA to do it all. Contact any nursing schools and hospital see if you can get some recomendation. Start looking for some options. Even a few hours a week will make such a differance. I hope this helped you, My heart is with you and my prayers are too. I did have my kids put a little note on facebook that we where looking and you would be supprised how many retired RN’s we got that could help us for very little money. We grew past that but it was a good start. Good luck my friend and remember we only have so much to give , we are worthy of some relief too. I know how hard it is and how much guilt we put on ourself but believe me it goes AWaY and it feels good to have a little of my life back. Tom is also seeing the differance and loves it. He hated what was happening to me. He said Rob doesn’t make sence for both of us to be sick does it? It’s me that is sick. Good Luck.

  3. May this be what you do, Donna. Prayers are with you both and have been with you
    every day. Listen to her/Him, please. Teressa

  4. Nancy says:

    I think you made the right decision and give it up to God. Your plate is so full, I can’t imangine. I often wonder where we will get the funds for hanicap accessing our bathroom in June, hand controls for the van, and a swivel seat for the van. But it’s only money and love and life is much more important. My heart goes out to you along with prayers. I do believe in prayer, they are not always answered like we would like them to be, but prayer chains and awesome. God bless you!!

    Nancy

  5. Patrick says:

    I don’t think you are being over dramatic at all. Caregiving can turn on the simplest twist of fate. Eyes wide open is pragmatic.

    Caregivingly Yours, Patrick

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