Realities of Life

For the most part, our home life is fairly stable meaning we have the same things happening day in and day out. We have a routine – I get Lynn up for the morning and help him with his exercise, take him to the bathroom for his bowel regimen, put him back to bed and do a partial bath including skin care, and he takes a nap to recover from that activity. It takes about three hours to do all that. None of it is complex (except sometimes the skin care) but most of it is very physically demanding and Lynn can do nothing to help with it except cooperate with what I do to him. Once this morning routine is completed, the rest of the day is pretty basic attendant type care (assist with eating, getting things to drink, changing position, helping him write, etc.). At night, the work increases again with preparing meals etc., for the next day, bath time, night time rituals, etc. Including my own personal care and feeding, it takes about five hours to get it all done and get us to bed. Again, the work is not complex care; just physical and time consuming. None of this is complicated but all of it is necessary to maintain quality of life that is not miserable every minute of every day till you die so it’s very important stuff. It is also stuff that if you cannot do on your own, is very, very expensive to have someone else do for you unless you are fortunate enough to have family or friends to help you out.

Continue reading at https://multiplesclerosis.net/caregiver/realities-of-life/

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About mscaregiverdonna

I am a full-time caregiver for my spouse who has Multiple Sclerosis while I try to work full-time, take care of our home, and handle any number of other functions that used to be shared by the two of us. I'm learning that it's amazing what you can do when you have to and when you have God to send you the resources you need to manage moment by moment.
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5 Responses to Realities of Life

  1. In the six years I took care of my late husband Bill, there were times when I wondered what would happen when I got sick. Fortunately, Bill’s Medicaid program covered respite care for him in a nursing home, but getting him there might have been a challenge. You can read more about this in my new memoir. For more information, visit http://www.abbiejohnsontaylor.com/memoir.htm .

    In the meantime, Donna, keep on keeping on. I’m sure Lynn appreciates all your sacrifices and doesn’t like having to depend on you or others for everything.

  2. bun747 says:

    I totally understand the daily routine. My husband has Muscular Dystrophy and I am his full time caregiver. It’s not complex work, but it’s important. You’re right, it’s very, very expensive to get help from a home health agency. I’m with you. You are doing the right thing for him. Stay strong!

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