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Rising Tide by Lynn Steigleder
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How to contact Donna
Sometimes readers have a need to talk privately. If you want to send me an email about your MS or caregiver challenges or thriumps, I would love to hear from you. My email address is donnasteigleder@gmail.comPublic Service Warning: Do Not Purchase from Radical Mobility
If you are considering purchasing a 4-wheel drive wheelchair, please do not purchase from Radical Mobility. We bought one in 2009 from them. It never worked. We sent the parts to them to repair. They never returned them. We finally received the parts we sent them them this year (2015). Multiple customers of theirs have told us of similar issues. Please, do not make the same mistake we made. Look elsewhere. I'll share more if you contact me directly.
Author Archives: Donna-Becoming a Family Caregiver
Becoming a Family Caregiver
I’ve moved! Find me now at https://becomingafamilycaregiver.com I’ve expanded my topic area to include all caregivers, not specifically multiple sclerosis related families. In addition, I focus the content on providing information on how to adjust to caregiving, resources, and how … Continue reading
Posted in Ms Journey
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Delirium and UTI’s – What’s the Connection?
Did you know that delirium was a symptom of a urinary tract infection? Neither did I, but it’s something I’m learning to recognize. Apparently, I’m not the only one who has experienced its impact because there was an article on the … Continue reading
Posted in Ms Journey
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Training Needed for Caregivers
Since I’ve retired, I’ve found myself on a mission to do something about the plight of caregivers. Why am I so stirred up? It’s because there is a severe lack of training for family caregivers. The lack of training is especially … Continue reading
Posted in Ms Journey
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No Time to Care
Caregiving is a very lonely responsibility. If you have ever been a caregiver, you understand what I mean. All caregivers have probably experienced that feeling of being alone when the smoke clears. The initial burst of enthusiastic help is over. Everyone has … Continue reading
Posted in Ms Journey
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Mental Health Caregiving
Throughout Lynn’s journey with MS, we have been fortunate that he has rarely had to deal with any form of mental health impairment. Having primary progressive MS, long ago, he lost his ability to move productively any of his limbs and … Continue reading
Posted in Ms Journey
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Moving to a New Website
I’m excited to announce that I am merging this website with a new website under construction called “Sharing with Caregivers.” Today I moved all the blogs I have written from this site to the new site in case you are looking … Continue reading
Posted in Ms Journey
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Specialization of Medicine – Is that a Good Thing?
I am concerned that the specialization of medicine is leading to a decrease in the quality of care available rather than an increase. I have seen this more and more over the past several months as my husband has had a series … Continue reading
Posted in Ms Journey
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Understanding Immunosuppression
My husband, Lynn, began taking Ocrevus, to treat his Primary Progress Multiple Sclerosis (PPMS) in March. As his caregiver, one of my responsibilities is to become familiar with his medications and associated risks. While Ocrevus holds great promise for individuals who have … Continue reading
Posted in Ms Journey
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New Mysteries All the Time
The mysteries of MS always keep it interesting as I struggle to manage my husband’s medical care and assist him in maintaining an optimum quality of life with Primary Progressive MS (PPMS). Another challenge came my way last week that stumped even … Continue reading
Posted in Ms Journey
Tagged Family caregiver, Multiple Sclerosis, Ocrevus, primary progressive MS
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MY INVISIBLE MS: SUPPORT FOR CAREGIVERS
Thank you to Sophia Nuamah for submitting the following guest post for the MS week. I appreciate her support for multiple sclerosis research and the family of caregivers around the world. Ms. Sophia Nuamah MyTherapy Landwehrstr. 60/62 80336 Munich, Germany … Continue reading
Posted in Ms Journey
Tagged Caregiver Support, Family caregiver, physicial well-being
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