Tag Archives: Multiple Sclerosis

New Mysteries All the Time

The mysteries of MS always keep it interesting as I struggle to manage my husband’s medical care and assist him in maintaining an optimum quality of life with Primary Progressive MS (PPMS). Another challenge came my way last week that stumped even … Continue reading

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End of Life Decisions

I try to stay optimistic about the future, but occasionally an event occurs that reminds me of how tenuous life can be. One of those events happened recently with the passing of a fellow caregiver’s spouse. Similar health histories About … Continue reading

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Prepare to Become a Caregiver

Prepare to become a caregiver. In 2015, research conducted by the American Association of Retired Persons (AARP) found that 43.5 million adults in the United States (approximately 29% of the adult population) had provided unpaid care to either a child … Continue reading

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Compassion Fatigue

It seems ironic, but did you know that caring too much could actually harm you? There’s a fancy name for it called “compassion fatigue.” While compassion fatigue and burnout seem similar, they have significant differences. Continue reading at https://multiplesclerosis.net/living-with-ms/compassion-fatigue/  

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Remember Whose Life You’re Living

As a caregiver, I want to help make my spouse’s life better. I want to help him find answers to his medical questions, assist him in doing the things he cannot do, and help him in whatever way I can. As … Continue reading

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Help with Difficult Conversations

Have you noticed how difficult it can be to have a sensitive conversation with another person without being misunderstood? Why is that? Difficult conversations Today our primary mode of communication seems to be through text messaging or tweets. We use short … Continue reading

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Understanding How FMLA Can Help

Unreliable attendance Living with MS means a lifetime of unpredictability. You may feel perfectly fine when you go to bed, but sometime during the night, a significant front moves through the neighborhood wreaking havoc on your body. Suddenly, getting out of … Continue reading

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Right to Decide

I often feel like I have multiple personalities, and knowing which one I should be using can be difficult. Sometimes I know who I want to be, but it’s not always the one I think I should be. There are even … Continue reading

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Unexpected Sadness

I got hit by feelings of sadness unexpectedly today. Keeping my self out of my husband’s sight at all times, I had to work really hard to hide the fact I was very close to crying. Usually, I guard my … Continue reading

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Hope or Regret: The 4-Wheel Drive Powerchair Debate

I know you’ve heard the phrase, “One person’s junk is another one’s treasure.” I have a new one for you: “One person’s hope is another one’s regret.” Four-wheel drive powerchair We have a $12,000 monstrosity my husband calls his four-wheel drive … Continue reading

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